Remember when I said you have your ups and your downs. We all have them. Well today was one of my really down days. I wont get into to much about what had happen I will tell you this. What happen put the brakes on but not stopped my dream. Yes the homework was hardContinue reading “You remember when”
Author Archives: Sheri Rhodes-Johnson
Well you have your up days and down days.
Well after a night of thunder storms, which I apparently slept through. Its time to get up and moving. Well in my case at least try. My doctor had to cancel the apointment today because she was ill. Oh well cant have issues with that lol. Now if I can get my service dog toContinue reading “Well you have your up days and down days.”
Well its the second week
I am not going to lie I didn’t want to wake up this morning. Good grief. I know you have to go to school and all of that. I had trouble sleeping last night, not to mention having this illness you have your good days and your bad days. I guess today is a badContinue reading “Well its the second week”
Are you kidding me
Well today was not the best day for me. On the second time trying to get this damn colon test it just went from worse to what the fuck. lets start with traveling down to the hospital. The highway was closed with no warning on the radio and the street sign well was not exactlyContinue reading “Are you kidding me”
Respect
I didnt know if I wanted to write this or not but after yesterday it was a given. My husband I don’t get a lot of time to spend together, with him working two jobs and me having all the doctors appointments. So when we do we go food shopping. Yesterday on our way toContinue reading “Respect”
Busy Week.
Another week of appointments and busy travels. I saw my Chiropractor today which was awesome. I think he an fix my elbow too. Hell he made it feel really good when I left. So much so I was able to straiten up the other room, of course with breaks. I finished Chapter one of RunawayContinue reading “Busy Week.”
The Start of the week.
Well I have also decided to add something to my plate. I had been thinking about my story starts. If you dont know what those are they are little books that I started writing fiction in. The only problem was when I did these I was either board at work or was just inspired, toContinue reading “The Start of the week.”
My body my life my choice
As you know by now I have a rare genetic disease. I have to have certain test to maintain that cancers are at bay or I need to take further steps. I am going to write about something that happen to me, and my husband. Let me first start off and state that yes IContinue reading “My body my life my choice”
Another day Another test
One thing I don’t like from having Cowden’s is the fact of all the damn testing. I know I have to have them however I do not have to like it. If you have not figured out what this blog post is going to be about, you guest it about my illness. I was havingContinue reading “Another day Another test”
Do you see me or do you even care?
Do you see me or do you even care? That is something I wonder every day towards the political circles both state and federal. You know the ones, surrounded by their private security. Their multiple cars, fancy houses and fully stock kitchen. Oh I cant forget their flashy and paid for schools. While everyone isContinue reading “Do you see me or do you even care?”
I am getting out of my zone
They say ts alwaays good o get out of your comfortabe zone. I am going to do that today. I think. I havent seen a denist for a while. I swore to my self I was going to get my teeth fix when i had a sec. Today is the day, I am scared yes.Continue reading “I am getting out of my zone”
This week, is going to be hard
Well its Sunday time to plan out the week of appointments. Come to find out not only am I going to be busy again, I have to be extra careful due to the incoming weather. Also I have to pick up husband after he drops off the car for maintenance. So again the stress isContinue reading “This week, is going to be hard”
Cowden Syndrome and Me
Have you ever had one of those days that you just dont want to get out of bed. Thats me every day, but with a bit of a switch. Its not without the lack of trying, its the fact that if I dont get out of bed I will start hurting. I wish I couldContinue reading “Cowden Syndrome and Me”
I have been debating on This post.
I have been doing a lot of soul searching on this matter that was brought to my attention yesterday. Even my son was asking me about this situation. My cousin emailed me from Denmark also about this situation. I was hoping never to go through this again. I was hoping that people would just letContinue reading “I have been debating on This post.”
Pandemic and Cowden and little old me.
Well, I thought my life couldn’t get any worse. Welcome to 2020. Coming out of the hospital, being stuck in a hotel then the pandemic hits. Talk about hell. I would admit my home health care nurse was fucking extraordinary. She calmed my nerves and helped me through everything. There where times having that stupidContinue reading “Pandemic and Cowden and little old me.”
Another day another Dr. Appointment
Another day in my busy week. I have to hit two doctor’s appointments. One to get stitches removed, and the other one to go over yesterday’s mammogram. While doing all of this I have to juggle not passing out, being dizzy. Not to mention answering questions from someone who I thought abandoned me, my primaryContinue reading “Another day another Dr. Appointment”
Again more issues
You know being sick seriously sucks. I have been battling one shoe dropping after another. Granted, I have been a trooper and a “warrior” battling these damn fights. I’m tired. Well going to my awesome chiropractor, he asked about my X-rays for my back. Ugh. The Chiropractor again was amazing. The hospital had not scheduledContinue reading “Again more issues”
I guess no one has respect.
To tell, you the truth is have people gotten just plain rude or just don’t care? There have been so many times I go into doctors appointments and I’m struck with the strangest looks and comments. I have seen it all as well as heard it all. From you know your appointment is at thisContinue reading “I guess no one has respect.”
When all else fails, go somewhere else
I’m not going to fabricate my experience with doctors you have seen that I don’t put up with half-hearted care. Let me explain. I have always had bad back issues. From days with spasms to days I can lift a truck. Well, when I was diagnosed with Cowden, yeah that pain increased. Even after theContinue reading “When all else fails, go somewhere else”
Well today was a good day
Well today was a great day when it came to the doctor’s appointments. I guess like I said before for every bad there is a good day. Today was that day. For the last few weeks there where bad news after bad news dealing with my medical issues. My surgeon yesterday told me that theContinue reading “Well today was a good day”
Are you flipping serious?
You know I sit here in front of my tablet confused and dumb founded. I know its not the pharmacist or the techs fault. I am just flabbergasted, by the shire stupidity of this hospital network. Let me explain. I take several medications. Three of them, I really need. Prozain- For my night Terrors Levothyroxine-Continue reading “Are you flipping serious?”
What works for me
(Remitted from my other blog page) Having cancer sucks. Even when it’s compounded by a rare syndrome. Especially when someone tells you need to try this or you need to try that. Well, I am going to tell you what works for me. Be advised this is what works for me do not assume itContinue reading “What works for me”
What works for me part two
(Re posted from my other blog site) Now, remember I was talking about a bag. Your purse is not going to cut it anymore. Depending on if you have an ileostomy bag or some other device you’re going to want to carry a bag, let’s face it your friends won’t be around all the timeContinue reading “What works for me part two”
June and The Woman Who Did 