Pandemic and Cowden and little old me.

Well, I thought my life couldn’t get any worse. Welcome to 2020.

Coming out of the hospital, being stuck in a hotel then the pandemic hits. Talk about hell. I would admit my home health care nurse was fucking extraordinary. She calmed my nerves and helped me through everything. There where times having that stupid bag attached me I didn’t know how to make it threw the day. She was there she gave me her personal number and if I had any questions about anything or if I needed to vent I could text her.

The pandemic at first was really scary for me. Just betting off the medport, and still on chemo pills I was afraid to go outside. My immunity was shot. I had to glove up, mask up eye shields and the whole nine. Not to mention the fact that I had to use a cane. I was afraid of people even coming close to them.

No I am not vaccinted, and this is the reason why. Do you know what the vaccine does to people with Cowden? Please see my blog about Cowden and what it is. I am not going to be the pin vussion for testing on that. I already have to many people wanting stuff from me because of my disease.

Having this genetic disorder frankly is a pain in the back side. I am always watching the Covid numbers and if they go up and if I have a procedure up incoming I plan accordingly. I am always having to check multiple cities’ numbers because my doctors are in multiple cities. Same with the weather, used to not care about the weather but being sick I am having to plan on how many layers of clothing. I am always either way to hot where I am having to fan the blankets, which causes me to become clammy. Or I am way too cold and not only do I have to have June next to me under the blanket (she is really warm) but I have to have my sweatpants a hat and multiple blankets.

So when you see someone who is weak and sick, cut them slack.