Well I gt to meet a really awesome doctor this week. Let me explain. I was referred to him by my ent doctor because I need to have a particular surgery. This doctor was amazing. He was also extremely patient due to the fact that JPS sent him all of my scans and not just ones of my head.
Get this my other surgeron failed to tell me about another ”hole” in my head but fixed it when he did the surgery. also that is why my migraines have been so intense and painful and the dizziness its because of these to holes in the small canals in my head. Also there was no Neuo consulted on the first surgery. IMAGINE THAT!!!! so this doctor will be consulting his partner who is a neuo and we are going to get my right side fix. He diagnosed me with ANOTHER RARE GENETIC DISORDER!!!!! Superior Semicircular Canal Dehiscence of both sides. he also said that i had a little bit of brain hemorrhaging on the right side and he doesnt want to see that.
UGH I have him a time frame to do the surgery and if its as bad as he said it is then he needs to do it with in that time frame. if not we need to wait until after my classes are done.
I will not let my syndrome define me.
I have completed 80% of one of my books I am writing. and with fingers cross I will graduate college this year.
June and The Woman Who Did 